Grandson B. turns four years old on May 12, and three days later he and his parents will fly from Georgia to New York City for his neurosurgery.   Is it terrible for this grandmother to be excited about this?  I so want this precious child to be completely healed.  We have been so distraught and worried, not knowing when or where the surgery would take place, and knowing has brought a sense of relief.

Dr. Alejandro Berenstein, the world’s foremost pediatric endovascular neurosurgeon has reviewed B’s case and the results of the tests done at Emory University Hospital in Atlanta.  He phoned my son-in-law two days ago and said that he personally would do the surgery to correct the AV fistula in B’s brain.  From what we understand, Dr. Berenstein actually developed the procedure that he will be using and that now is used worldwide to correct this type of problem.

B. will meet with the doctor on Friday, May 16 and then will have the weekend to be with his mom and dad in New York City before the surgery takes place the following Monday.  By coincidence, B’s uncle J. from Florida will be in New York on business at that time and had already planned to take his daughter, one of B’s favorite cousins, with him on the trip.  What a blessing that B. will have his uncle and cousin there for the weekend!

In the meantime, there are ongoing fundraisers to help defray medical costs, including a benefit auction that already has been held and an upcoming Benefit for Ben event with live music, raffles, and other activities.

Benefit for Ben FB page

Family, friends, neighbors, colleagues at work, and church congregations have rallied around B. and his parents.  Automobile magnets have been ordered, asking for prayers.

Ben magnet

 

And Ben’s mom and dad are working hard to fulfill orders for “Ben bracelets” that people are wearing to remind them to keep B. in their thoughts and prayers daily.

Ben bracelets

 

Many thanks to everyone who continues to ask about B.  Please continue to remember him as as he undergoes this neurosurgery.

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4 thoughts on “Smacked in the Gut By Life, Part 3: No More Waiting !

  1. I hope this doesn’t confuse matters, but I picked this up from a medical site today:

    Arteriovenous malformations in the brain

    Improved imaging means that unruptured arteriovenous malformations within the brain are identified more frequently – often as incidental findings. Treatment presents a dilemma: left alone, risk of rupture and intracranial haemorrhage is around 1% per year; on the other hand, attempts to obliterate them before rupture by neurosurgical excision, endovascular embolisation or stereotactic radiosurgery carry a considerable risk. A Randomised Controlled Trial published earlier this year reported that the balance was strongly in favour of not intervening during a 3-year follow-up. JAMA now publishes a cohort study in which outcomes were better without intervention for up to 12 years.

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    1. Thank you for your interest and comments. Unfortunately, my grandson already is experiencing effects from the arteriovenous fistula. His left eye is beginning to bulge, and he has developed a slight limp in his right leg. Doctors in Atlanta and doctors in New York have told us that if the procedure is not done, he will begin to regress mentally and physically and will not live.

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